Blog Archives

Botox Savings Programs and Aimovig Savings Program too!

I just wanted to let some readers out there know, that if you have been diagnosed with Chronic Migraine you may qualify for a discount and or reimbursement of a deductible for Botox injections.   See this website to see if you qualify!  https://www.botoxchronicmigraine.com/botox-coverage-costs

So, I’m nearly 3 months into my Botox shots and I have to say that I’ve seen an improvement with my pain.   I still have other migraine symptoms.  However, the pain has been much less!

About 3 weeks ago my neurologist was looking at the migraine diary that I’ve been doing with a study for Amgen on Chronic Migraine.  I found this out through Migraine.com.  Check them out and subscribe for more information!  Anyhow, she saw how many migraines I have had in the last two months and decided I was a candidate for Aimovig!

I had to fill out a bunch of paperwork at the neurologist office.  They gave me a brief overview of how I would be injecting into myself.   I got a letter in the mail about a week later.

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So, I’m getting my first two doses for free!   A few days after that I received a nice little booklet from the Amgen.

 

A week later I received a red sharps disposable can.  I have to throw out the injectors into this sharps container, and then when it’s full send it back to the company who provided it.

On Saturday I received my first dose of medicine for free.   I’ll receive my second dose for free while I’m waiting for my insurance company to pre-approve it.   If my insurance doesn’t approve it, I’ve read it’s about $580.00 a dose!   I read in the letter that came with my medicine that I could apply for a savings program.  Which you can find here if you have been prescribed this medicine! https://www.aimovig.com/sign-up/ .

The medicine needs to be refrigerated.  Last night I finally sucked it up and gave myself the injection.  I *think* I did it correctly.  I hope I did it correctly.   I’ve watched some YouTube videos on how to do it and other people’s experience with it.  I’ve read that it takes a full 24 hours before it really starts working.

I will keep you posted!

 

 

 

Mommy Has a Migraine AND Exciting News!

I have been working on this book for a couple of years now.  Over the last couple of years, my daughter started asking me some really interesting questions, which made me change the book to answer her questions.  I believe I’ve written it in a style and using words most kids will be able to understand.   I tried to do this without comprising what a migraine really is, an entire disorder with many symptoms.   In this book, I’ve written mostly about my personal experiences and symptoms.

This week, I found an editor because it really needs it.   However, I have found an illustrator who is currently working on concept art for my book!   She’s an up and coming illustrator, editor, producer, and animator, her name is Melina Lescoe from Sweet Potato Productions. I’m really excited to be working with her!

To see some of her work, please click on the links above or her websites!

www.melinalescoe.com

http://www.sweetpotatoproductions.com/

Artwork for article provided by Melina Lescoe!

 

 

How Chronic Migraines Changed How I Live and Parent

Recently, I got an article published on GrokNation’s site.   Please read all about it here!

http://groknation.com/parenting/living-chronic-migraine-pain-changed-live-parent/

Which Side is Your Bad Side?

Most of the time I get migraines on the right side of my head.  I’m used to these and have a higher pain tolerance for these.  However, if I start to get one on the left side of my head (aka, the bad side or the wrong side) I know I’m in for trouble!!!!!   Which side is your bad side?

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What Does Your Aura Look Like?

I don’t get aura’s before migraines most of the time, but when I do I know it’s going to be a bad one.  What do your aura’s look like?  Mine look like this:

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Enhanced Water?

Do you put anything extra or buy water with extra ingredients to help with your migraines.   They always tell us to drink plenty of water.  So I drink a ton of water and then always buy some that has electrolytes in it.  Lately I’ve been gagging down 20 drops of Trace Minerals added to my electrolyte water in the morning.  It has a slight metallic taste to it.  So I do it like a shot and then chase it with anything that tastes decent!  It could be that I’m just having a good week, but I’ve been pretty decent this week since starting this.  I got the Trace Minerals here.FullSizeRender (006)

Could You BE Louder?

I’m channeling my inner Chandler Bing here.   I know that since I’ve become a mom, my indoor voice and outdoor voice are way louder than they used to be.   However I know some people who are always just very loud.   Whether it’s due to hearing loss or the fact that they too are just mother’s trying to be heard!!!! I get it!!!  However, some days when I have a really bad migraine, I’d love to scream this! (but I can’t b/c it hurts too much!)

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That Moment When…..

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Common Weather Triggers

What is your most common Weather Trigger?   Mine is the Barometric Pressure changing.   I’m using a new app called MigraineX, which you can download to alert you to changes in the Barometric Pressure.  You can also, buy their earplugs which is supposed to help you balance out the pressure in your head when these changes occur.  On my next airplane flight I’m going to try these because I do suffer from migraines after a long flight.  (Long as being over 2 hours!)

The Bright Light from the sun can also be a trigger so I ALWAYS have sunglasses.  Some days I even have to wear them on cloudy days b/c I can tell my eyes are being light sensitive!

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Pretending You Are Well?

I think we have all done this, pretending your well.   My standard answer is that I’m fine, even though I’m in pain.  Now if it’s a two Imitrex and lay down migraine, I’m not pretending I’m well.   However most days I can have a migraine and pretend like nothing is wrong.   How good are you at that?   Now that is acting!!!!

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