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My Journey with Aimovig and Botox.

Hey guys!   So, after my neurologist prescribed me Aimovig I’ve been on a journey!

Let me tell you a little history of my migraines for any newbies here.  I have lived with Chronic Migraine for over 20 years.  I spent 18 years of my life being told by doctors that my headaches were stress related, that certain medications and or birth control couldn’t possibly be making my headaches worse, it was sinus related and or it’s allergies.  Stress was the biggest diagnoses and then I was blown off after that.   I fired some many trying to figure out why I had so many headaches.  I have about 3-4 headaches a week, minimum.   I could still function with most of them, so I didn’t think they were migraines.  Finally, I found a doctor who believed me at least about the bad ones.   He told me I was having a migraine.   He prescribed me Imitrex for the migraines and told me to meditate.  Considering meditation wasn’t a big thing back when he told me this, that was pretty progressive.   Unfortunately, he retired about 2 years after that!  So, I began another search for a new doctor.

Fast forward 18 years later, and countless uphill battles, I found a trial study for a new migraine medicine.  They called and interviewed me and told me I didn’t qualify for that study because what I described was chronic migraines.   I was like, “What!!!!!  First off, you, believe me, secondly, I’m chronic?   I told my neurologist about it and she didn’t realize that all my headaches were migraines, just varying degrees of pain.  Most days I can function with the pain, but I’d developed a high pain tolerance.   That being said, it takes a toll on your body.   Here I am 48 years old, I keep putting on weight, and by the time I get home from work, I’m exhausted from pretending to others that I was fine and pushing through the pain.  My family isn’t getting me at my best, they are usually getting me at my worst.  Lastly, I’m not getting enough exercise, because I’m completely depleted of energy by the end of the day.

Back in November, my neurologist prescribed me Aimovig.  She filled out some paperwork so that I could get two doses/two month supply for free to try.   After I took the first dose I did have less mild migraines. After the second dose, even less mild migraines.   I just started making progress and feeling good again, and the insurance company then told me it would not be covered because I hadn’t tried one of three class of drugs.   Insurance companies require you to try cheaper preventatives first, which include: Beta-Blockers which are primarily prescribed for blood pressure regulation, SSRI’s which are selective serotonin reuptake inhibitors that help with anxiety and depression and Anticonvulsant or Antiepileptic drugs which are used to treat Epilepsy.  I had already been on several different SSRI’s over the years.   My doctor chose to put me on a Beta-Blocker because they have far less worrisome side effects than the dreaded Topamax.

I was on the Beta-Blocker for a month and a half to give it a fair shot.   It didn’t help, and on top of that I had a migraine for 21 days straight. I lost all the progress I had made.  I called Amgen and they have an Aimovig Ally Access Card program.   I was able to get a few more doses for free thanks to this program. You can get up to 1 year of free Aimovig provided it’s been prescribed to you and your insurance company has denied coverage.  Then after your insurance company approves it, you have a low co-pay.    I was anxious to get back on it because the longer I feel well, the more I can do!  Right?

I’m happy to report that my insurance carrier FINALLY approved my Aimovig and with this discount card I currently only have to pay $5.00.   This is a $500.00 a month drug!

I’m still working on getting Botox for Migraines covered.  Most of this is due to the fault of the doctor’s office where I got the injections in July of 2018.  They STILL have not billed my insurance for it and keep sending me a bill even though I’ve talked with them numerous times about it.    If you want to see about the Botox Savings Program please follow the link.   Hopefully, I can get pre-approved for Botox and see if this in conjunction with the Aimovig will help significantly reduce my migraines.   I’ll keep you posted.

Subscribe to get my latest updates!  I’m currently working several articles.  Product reviews of Therabox, Axon’s CBD Oil, Blue Blocking Light Glasses, Float Therapy and how I plan to survive DisneyWorld with Migraines!!!

 

 

 

 

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Botox Savings Programs and Aimovig Savings Program too!

I just wanted to let some readers out there know, that if you have been diagnosed with Chronic Migraine you may qualify for a discount and or reimbursement of a deductible for Botox injections.   See this website to see if you qualify!  https://www.botoxchronicmigraine.com/botox-coverage-costs

So, I’m nearly 3 months into my Botox shots and I have to say that I’ve seen an improvement with my pain.   I still have other migraine symptoms.  However, the pain has been much less!

About 3 weeks ago my neurologist was looking at the migraine diary that I’ve been doing with a study for Amgen on Chronic Migraine.  I found this out through Migraine.com.  Check them out and subscribe for more information!  Anyhow, she saw how many migraines I have had in the last two months and decided I was a candidate for Aimovig!

I had to fill out a bunch of paperwork at the neurologist office.  They gave me a brief overview of how I would be injecting into myself.   I got a letter in the mail about a week later.

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So, I’m getting my first two doses for free!   A few days after that I received a nice little booklet from the Amgen.

 

A week later I received a red sharps disposable can.  I have to throw out the injectors into this sharps container, and then when it’s full send it back to the company who provided it.

On Saturday I received my first dose of medicine for free.   I’ll receive my second dose for free while I’m waiting for my insurance company to pre-approve it.   If my insurance doesn’t approve it, I’ve read it’s about $580.00 a dose!   I read in the letter that came with my medicine that I could apply for a savings program.  Which you can find here if you have been prescribed this medicine! https://www.aimovig.com/sign-up/ .

The medicine needs to be refrigerated.  Last night I finally sucked it up and gave myself the injection.  I *think* I did it correctly.  I hope I did it correctly.   I’ve watched some YouTube videos on how to do it and other people’s experience with it.  I’ve read that it takes a full 24 hours before it really starts working.

I will keep you posted!

 

 

 

Mommy Has a Migraine AND Exciting News!

I have been working on this book for a couple of years now.  Over the last couple of years, my daughter started asking me some really interesting questions, which made me change the book to answer her questions.  I believe I’ve written it in a style and using words most kids will be able to understand.   I tried to do this without comprising what a migraine really is, an entire disorder with many symptoms.   In this book, I’ve written mostly about my personal experiences and symptoms.

This week, I found an editor because it really needs it.   However, I have found an illustrator who is currently working on concept art for my book!   She’s an up and coming illustrator, editor, producer, and animator, her name is Melina Lescoe from Sweet Potato Productions. I’m really excited to be working with her!

To see some of her work, please click on the links above or her websites!

www.melinalescoe.com

http://www.sweetpotatoproductions.com/

Artwork for article provided by Melina Lescoe!

 

 

Could Baobab Fruit Powder Help Provide Relief For Your Migraines?

So, I try to follow the Trim Healthy Mama eating plan.  I fall off the wagon, but then I try my best to get back on it.  What usually throws me off the wagon is lack of energy and my chronic migraine condition.  When you don’t feel good, and your stomach is not at it’s best, you tend to eat what sounds good, like Saltine Crackers, or white bread (gasp!).

Recently I was on the Trim Healthy Mama shopping site buying some more of their Super Sweet Blend Packets to go.  Which are awesome to keep in your purse, use at work and they also help you measure out how much you are putting in!   I saw this Baobab Boost Powder that has a ton of anti-oxidants, more than Blueberries, Acai Berries, and Pomegranates!   It’s also supposed to give you more energy!  So I was up for anything that might give me more energy!

It’s also supposed to help with blood circulation, blood pressure, and many other things.  If you go to the bottom of the Trim Healthy Mama’s website about the Baobab Powder you will find a list of benefits.  There are also a few other sites that list the benefits as well.

https://www.organicfacts.net/health-benefits/fruit/baobab.html

https://www.betternutrition.com/checkout/baobab-health-benefits

https://www.myprotein.com/thezone/nutrition/baobab-powder-multiple-benefits/

I’m not a doctor nor do I pretend to be one on the internet or on T.V.!!!   All I can tell you is that I’ve been drinking this powder mixed in with Lemons with THM Super Sweet Blend and in my favorite English Breakfast Tea for 30 days.  I’ve only had 3 migraines that actually weren’t that bad and that only took a couple of Motrin to help them go away.  Now I could be having a really good month, it’s hard to tell.  I generally have 10-15 migraines a month.  It doesn’t take much to trigger them, a little stress, a change in the weather, certain lighting, smells, barometric pressure changes, altitude changes and the list goes on and on.

Here’s a video from Trim Healthy Mama about it.   I’m not an affiliate for them so I don’t make any money from this if you buy it.   If you are like me and willing to try just about anything to help you with your migraines, for $13.99 which is a month’s supply it can’t hurt to try it!

How Chronic Migraines Changed How I Live and Parent

Recently, I got an article published on GrokNation’s site.   Please read all about it here!

http://groknation.com/parenting/living-chronic-migraine-pain-changed-live-parent/

Which Side is Your Bad Side?

Most of the time I get migraines on the right side of my head.  I’m used to these and have a higher pain tolerance for these.  However, if I start to get one on the left side of my head (aka, the bad side or the wrong side) I know I’m in for trouble!!!!!   Which side is your bad side?

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What Does Your Aura Look Like?

I don’t get aura’s before migraines most of the time, but when I do I know it’s going to be a bad one.  What do your aura’s look like?  Mine look like this:

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Enhanced Water?

Do you put anything extra or buy water with extra ingredients to help with your migraines.   They always tell us to drink plenty of water.  So I drink a ton of water and then always buy some that has electrolytes in it.  Lately I’ve been gagging down 20 drops of Trace Minerals added to my electrolyte water in the morning.  It has a slight metallic taste to it.  So I do it like a shot and then chase it with anything that tastes decent!  It could be that I’m just having a good week, but I’ve been pretty decent this week since starting this.  I got the Trace Minerals here.FullSizeRender (006)

Pretending You Are Well?

I think we have all done this, pretending your well.   My standard answer is that I’m fine, even though I’m in pain.  Now if it’s a two Imitrex and lay down migraine, I’m not pretending I’m well.   However most days I can have a migraine and pretend like nothing is wrong.   How good are you at that?   Now that is acting!!!!

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What One Piece of Advice About Curing Your Migraines Annoys You the Most?

Mine is, “Have you tried drinking more water?”   I drink about 10-12 8 ounce glasses of water a day.  Half of those usually include Electrolytes and 1 contains Trace Minerals.

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