Blog Archives

My Journey with Aimovig and Botox.

Hey guys!   So, after my neurologist prescribed me Aimovig I’ve been on a journey!

Let me tell you a little history of my migraines for any newbies here.  I have lived with Chronic Migraine for over 20 years.  I spent 18 years of my life being told by doctors that my headaches were stress related, that certain medications and or birth control couldn’t possibly be making my headaches worse, it was sinus related and or it’s allergies.  Stress was the biggest diagnoses and then I was blown off after that.   I fired some many trying to figure out why I had so many headaches.  I have about 3-4 headaches a week, minimum.   I could still function with most of them, so I didn’t think they were migraines.  Finally, I found a doctor who believed me at least about the bad ones.   He told me I was having a migraine.   He prescribed me Imitrex for the migraines and told me to meditate.  Considering meditation wasn’t a big thing back when he told me this, that was pretty progressive.   Unfortunately, he retired about 2 years after that!  So, I began another search for a new doctor.

Fast forward 18 years later, and countless uphill battles, I found a trial study for a new migraine medicine.  They called and interviewed me and told me I didn’t qualify for that study because what I described was chronic migraines.   I was like, “What!!!!!  First off, you, believe me, secondly, I’m chronic?   I told my neurologist about it and she didn’t realize that all my headaches were migraines, just varying degrees of pain.  Most days I can function with the pain, but I’d developed a high pain tolerance.   That being said, it takes a toll on your body.   Here I am 48 years old, I keep putting on weight, and by the time I get home from work, I’m exhausted from pretending to others that I was fine and pushing through the pain.  My family isn’t getting me at my best, they are usually getting me at my worst.  Lastly, I’m not getting enough exercise, because I’m completely depleted of energy by the end of the day.

Back in November, my neurologist prescribed me Aimovig.  She filled out some paperwork so that I could get two doses/two month supply for free to try.   After I took the first dose I did have less mild migraines. After the second dose, even less mild migraines.   I just started making progress and feeling good again, and the insurance company then told me it would not be covered because I hadn’t tried one of three class of drugs.   Insurance companies require you to try cheaper preventatives first, which include: Beta-Blockers which are primarily prescribed for blood pressure regulation, SSRI’s which are selective serotonin reuptake inhibitors that help with anxiety and depression and Anticonvulsant or Antiepileptic drugs which are used to treat Epilepsy.  I had already been on several different SSRI’s over the years.   My doctor chose to put me on a Beta-Blocker because they have far less worrisome side effects than the dreaded Topamax.

I was on the Beta-Blocker for a month and a half to give it a fair shot.   It didn’t help, and on top of that I had a migraine for 21 days straight. I lost all the progress I had made.  I called Amgen and they have an Aimovig Ally Access Card program.   I was able to get a few more doses for free thanks to this program. You can get up to 1 year of free Aimovig provided it’s been prescribed to you and your insurance company has denied coverage.  Then after your insurance company approves it, you have a low co-pay.    I was anxious to get back on it because the longer I feel well, the more I can do!  Right?

I’m happy to report that my insurance carrier FINALLY approved my Aimovig and with this discount card I currently only have to pay $5.00.   This is a $500.00 a month drug!

I’m still working on getting Botox for Migraines covered.  Most of this is due to the fault of the doctor’s office where I got the injections in July of 2018.  They STILL have not billed my insurance for it and keep sending me a bill even though I’ve talked with them numerous times about it.    If you want to see about the Botox Savings Program please follow the link.   Hopefully, I can get pre-approved for Botox and see if this in conjunction with the Aimovig will help significantly reduce my migraines.   I’ll keep you posted.

Subscribe to get my latest updates!  I’m currently working several articles.  Product reviews of Therabox, Axon’s CBD Oil, Blue Blocking Light Glasses, Float Therapy and how I plan to survive DisneyWorld with Migraines!!!

 

 

 

 

Botox Savings Programs and Aimovig Savings Program too!

I just wanted to let some readers out there know, that if you have been diagnosed with Chronic Migraine you may qualify for a discount and or reimbursement of a deductible for Botox injections.   See this website to see if you qualify!  https://www.botoxchronicmigraine.com/botox-coverage-costs

So, I’m nearly 3 months into my Botox shots and I have to say that I’ve seen an improvement with my pain.   I still have other migraine symptoms.  However, the pain has been much less!

About 3 weeks ago my neurologist was looking at the migraine diary that I’ve been doing with a study for Amgen on Chronic Migraine.  I found this out through Migraine.com.  Check them out and subscribe for more information!  Anyhow, she saw how many migraines I have had in the last two months and decided I was a candidate for Aimovig!

I had to fill out a bunch of paperwork at the neurologist office.  They gave me a brief overview of how I would be injecting into myself.   I got a letter in the mail about a week later.

IMG_8083

So, I’m getting my first two doses for free!   A few days after that I received a nice little booklet from the Amgen.

 

A week later I received a red sharps disposable can.  I have to throw out the injectors into this sharps container, and then when it’s full send it back to the company who provided it.

On Saturday I received my first dose of medicine for free.   I’ll receive my second dose for free while I’m waiting for my insurance company to pre-approve it.   If my insurance doesn’t approve it, I’ve read it’s about $580.00 a dose!   I read in the letter that came with my medicine that I could apply for a savings program.  Which you can find here if you have been prescribed this medicine! https://www.aimovig.com/sign-up/ .

The medicine needs to be refrigerated.  Last night I finally sucked it up and gave myself the injection.  I *think* I did it correctly.  I hope I did it correctly.   I’ve watched some YouTube videos on how to do it and other people’s experience with it.  I’ve read that it takes a full 24 hours before it really starts working.

I will keep you posted!

 

 

 

My Dog Got Skunked Migraine. Botox for Jaw Clenching?

So, I had Botox for my migraines two months ago and it seems to be helping, in most areas.   I had asked my dentist about the botox for grinding my teeth and she said it wouldn’t help, but then I see that it IS supposed to help with jaw clenching, which I do! So, the next time I go, I’m going to ask about getting help with that.  I have a dental appliance to help my teeth, but it doesn’t stop me from clenching my jaw.  Has anyone else had experience with Botox helping with their jaw clenching?   Please let me know!!!  Please feel free to leave comments on my comments page!

However, my dog got skunked earlier this week, and quite frankly I’m not sure there was anything that could have prevented that migraine, which I’m still dealing with today on a much smaller scale.   I’m able to work. I have had a migraine for 4 days, but my dog still smells!  Although you have to get close to him to really smell it.  Oy!!!  I couldn’t get the smell out of my nose for at least two days.  He’s always by my side when I have a migraine, but this was one of those instances where I was like….AAAAAAAHHHHHHHH   get away from me!!!!!

So here I am at work today with sunglasses on, praying that what little pain I have will remain little!

Facetune (002)

Here is my poor dog, after being at the vet!  He had to get a vaccine booster.  He’s allergic to it, so this is my dog on Benadryl.  It was like he was drunk all night.  It’s sad and funny at the same time!

IMG_8034 (002)

Day 17 after Botox Treatment for Migraines

So, today is day 17 of my first Botox experience.  I intended to write a day 10 article, but life got in the way.   Day 10 is the day when you are supposed to see and feel some results.  So, here are my results thus far.

I didn’t realize how much effort I was using to keep my eyes open.  I have deep set eyes and as I age, it’s getting harder and harder to see without forcing my eyes open wider.  That has gone away!  Yay!  I’ve had a total of 2 migraines.  One right after my treatment, which I expected and another after a long stressful day.  HOWEVER, the 2nd one, went away with plain Advil.

My WTF lines in my forehead are barely visible now.   That’s cool.  Rarely are there “good” side effects when you take a drug!   My temples feel more relaxed than ever.  I still have the bruise next to my eye.  Yesterday I thought I was on the verge of getting a migraine all day.   I took some Advil and after a few hours, it didn’t help.  I had my Imitrex waiting for me and I was getting ready to take it.  The pain was tolerable, but it was slowly increasing, and then it just went away.

So, I’m leaning towards saying that this is helping me so far.  I will write another follow-up article to see if my progress continues and what happens when I get the second round of Botox.  They said they could give me more if necessary, and I think I do need a little more above my right eye area, which is the area that always hurts the most when I get a migraine.

Michigan Headache and Neurological Institute

Exciting news for me!  I was recently accepted to become part of a trial for a new medicine and the Michigan Headache and Neurological Institute in Ann Arbor, Michigan.   I will be going there on the 22nd of February for my first evaluation.

If you want to find out or participate in a study go to this page and find out more details and call them!   The more research and treatment options we have the better!!!  Make life better for people with Chronic Migraines!

Since MHNI categorized me as a Chronic patient I am going to be finding out what the process is to receive Botox and get it covered by my insurance.   I will let you know what the process is and give you tips and see if it helps me and let me know if it helps you!

After my last 12-day migraine I’m willing to try anything to ease the pain and regain my life back!

If you suffer from Migraines help yourself while helping others!!!!  VOLUNTEER!!!

migrainestudy

 

%d bloggers like this: